“Ain’t Going Down ‘Til Gluten Free Means Gluten Free”–NFCA’s Amber Designation for Domino’s Pizza … Now “Suspended”

I haven’t posted on gfe for a while. Why? Because I’ve been off “screaming” in lots of other places. The truth is that I have not been a happy camper the last two weeks, and if you follow me on Facebook or Twitter, you already know that and why. I’ve been writing and re-writing posts to discuss the subject here, but none of them have worked out to my satisfaction. While I’ve never been a huge Garth Brooks fan; I did see him in concert once and he was very entertaining. Somehow the ”feeling” of his super fast-paced, hard-to-keep-up-with-what’s-going-on song “Ain’t Going Down Until the Sun Comes Up” fits the current situation in our gluten-free community. I’m trying to stay true to his song’s original musical format in a version I’ve created,  but I’ve used my own lyrics to create Ain’t Going Down ‘Til Gluten Free Means Gluten Free. Play Garth’s version first if you like (via the YouTube video below), so you’ll have the music in your head as you read/”hear” my version. My lyrics work pretty well for most of my song but, admittedly, I think I got a little off the musical track towards the end. Still, the message is there and I think it’s an important one.

Ain’t Going Down Til “Gluten Free” Means Gluten Free

Bright and early Monday morning
NFCA starts the pleading
You’re important in our community!
Spread the word on Domino’s “gluten-free” crust, will you please?
“It’s appropriate for those with mild gluten sensitivity.”
Blood pressure rising; feeling I can’t breathe
In a state of disbelief on NFCA endorsing
Pizza unsafe for its namesakes and its wording on “mild” sensitivity
Fire off an email to NFCA stating my DISMAY
Head to social media to see what others have to say
Reaction’s quick and fierce on Twitter—a veritable Twitstorm in fact
Domino’s is only for Kim Kardashian and those just in “the act”
Doubtful hearing from NFCA will improve my day
But take the call anyway
NFCA says Domino’s didn’t want to tell people “No” any more
So we helped them keep the gluten free from walking out the door
Am told that EVERYTHING is shared!
The words *might be*, *could be*, *possibly* should be “it’s there!”
Sharing’s the lesson we learned in kindergarten, but not for gluten free
I tell them “you’re defying your mission!”
You just kicked off Keep It Simple and Safe (KISS)
With my Hidden Gluten: Four Place and One Resource to Watch
Now you’re promoting obvious gluten
This pizza’s not safe for anyone
I’m thinking my support for NFCA is done
Down comes my post on GREAT Kitchens Amber
After years of lending my support; working together
Better off eating at my local joint
Where they try to get the cross contamination point
Reader tells me her Domino’s getting her dedicated screens
Example of “front of the house” training dangerous and unforeseen
Amber really means red and I’m seeeeeeing Red

Ain’t going down ’til “gluten free” means gluten free
Ain’t givin’ in ’til they get enough
Going ’round the world on the interwebs
Ain’t goin’ down ’til “gluten free” means gluten free

My gluten-free friend called NFCA
Knowing Alice Bast is celiac and wouldn’t eat gluten any day
“How does Alice know Domino’s is “delicious” as she says?”
“Domino’s made Alice a safe pizza,” it’s explained.
“Unlike the ones we’d be eating,” my friend complains.
Feeling disillusioned to the bone
I look to others to know I’m not alone.
Gluten-Free Homemaker says she’s “miffed”
Reminds us many untested gluten free may have celiac
Doesn’t take much gluten to sideline others with gluten sensitivity
Jules interviews Alice Bast on her Gluten-Free Voice
Dr. Fasano’s statement is read on air
“[those] diagnosed with a gluten disorder should not eat this pizza”
The opposition calls come in again and again
One after another, the answers are the same
NFCA says  “they were going to do it anyway”
Disclaimers, YouTube Video, and FAQs will save the day!
My call gets through
Told “no cross contamination controls” I say
NFCA maintains party line
“Well, kitchen practices may vary”
Yes, siree, there’s no guarantee; when it’s Domino’s, an Amber designee
Domino’s testing results touted as “surprising”
“Majority tested gluten free”
Not same as what’s on NFCA’s site
And majority doesn’t serve all
Tasty Eats At Home weighs in with her thoughts
And the chorus sings “Amen!”
Debi is trying to channel Bruce Banner
And keep The Hulk at bay
It might be May,
But Will Ferrell and Elf even come into play
Speculation is rampant
From many who feel “sold out”
I’m sharing on Facebook, sending out tweets
Again and again, not ashamed of repeats
Many “get it” keeping me upbeat
Some celiacs say they’re eating Domino’s no matter what
They call us “gluten purists”
Yell at us for telling others how to eat

Ain’t going down ’til “gluten free” means gluten free
Ain’t givin’ in ’til they get enough
Going ’round the world on the interwebs
Ain’t goin’ down ’til “gluten free” means gluten free

NFCA’s getting quieter but not backin’ down
1in133.org rolls out Ditch Amber; pressure begins
We head to Change.org to sign their petition
Hundreds a day say yes, Ditch Amber!
All week we’re sharing, educating, stating our case
Then it’s Friday night and drinks are calling
Rather be drinking than bawling
NFCA suspends Amber right at happy hour
Clicking drinks and dancing with Mr. GFE
Celebrating the people’s power!
Big names weighed in
Saying “gluten free” has to mean gluten free
Fasano led the way
Kupper wrote an open letter; she didn’t balk
Guandalini spoke for NASSCD
ABC news forced Dr. Green and Columbia to talk
Both Domino’s and NFCA were taken to task by ACDA
CDF’s very brief statement also covered CSA
But CDF and NFCA have been dancing cheek to cheek
Din of gluten-free crowd is dying down
But questions still remain before the refrain
Amber at Domino’s truly headed out the door?
Let Domino’s continue “gluten-free” pizza without a fight?
Cheryl let us know that restaurants must soon abide by “gluten-free” rules, too
How’s NFCA Amber going to “save” us in the future?
Why’re you usually “unbiased” gluten-free folks remaining mute?
Vendors, authors, others who mislead, you won’t let slide by
And you’re quiet now? Why?

Ain’t going down ’til gluten free means gluten free
Ain’t givin’ in ’til they get enough
Going ’round the world on the interwebs
Ain’t goin’ down ’til gluten free means gluten free

I hope you’re with me on this one!

Shirley
Not just gf, but gfe!

Full Disclosure/Disclaimer: This post may contain one or more affiliate links. If you purchase through them, your cost will always be the same, but I will receive a small commission. Thanks for the support! Read the full disclaimer here.

Comments

76 Responses to ““Ain’t Going Down ‘Til Gluten Free Means Gluten Free”–NFCA’s Amber Designation for Domino’s Pizza … Now “Suspended””

  1. Shelly on May 20th, 2012 11:08 pm

    Shirley, you rock! :) This is awesome, and I am so on board with you!

    • Shirley on May 28th, 2012 12:21 am

      Hi Shelly–Thank you, dear! :-) I love having you as one of my cheerleaders, especially when you are not stepping back on this issue!

      Shirley

  2. Debi on May 20th, 2012 11:13 pm

    Bravissimo! Or as we say back home, hana hou! :D

    • Shirley on May 28th, 2012 12:22 am

      Hey Debi–I had to look up hana hou, of course, but I love it! My only experience with anything remotely resembling “hana hou” was a trip on The Road to Hana in Maui almost 10 years ago. Loved that, too! ;-)

      Shirley

  3. Pamela Erickson on May 20th, 2012 11:28 pm

    Way to go! Way too many gluten-free folks who can’t eat Domino’s
    pizza. Just too frustrating.

    • Shirley on May 28th, 2012 12:24 am

      Hi Pamela–So glad you agree! We need to speak out and keep others who need to be gluten free for medical reasons from eating this pizza … at the very least.

      Shirley

  4. Lori Rabideaux on May 21st, 2012 12:32 am

    Right there with you Shirley!

    • Shirley on May 28th, 2012 12:25 am

      Thanks, Lori! I’m appreciating the support! Spread the word please. BTW, I don’t think I’ve officially welcomed you to gfe yet–so glad to have you here! :-)

      Shirley

  5. The Celiac Husband on May 21st, 2012 12:44 am

    If you need an agent…….
    Call me. Call me.

    • Shirley on May 28th, 2012 12:27 am

      The Celiac Husband–You ALWAYS give me a chuckle!! Okay, I’m putting you on speed dial in case I decided to go “big time”! ;-)

      Shirley

  6. Kristina on May 21st, 2012 1:05 am

    “you sit on a throne of lies!” <–has to be my favorite ever! :)

    well done, my friend! I agree this is all preposterous, and I am only one with a gluten "intolerance" as told by my doc.

    also? I have seen Garth in concert once, YEARS ago, and he was GOOD. xxo!

    • Shirley on May 28th, 2012 12:29 am

      Hey Kristina–I absolutely LOVED that post! I thought it was so, so perfect!! Preposterous is indeed a good word for the situation. Honestly, I’m outraged that more who are gf are not outraged!

      Oh, and yeah, I have to admit that Garth was pretty darned impressive! I did hear him sing this song … it’s incredible done live. Of course, live shows are always pretty awesome in general.

      xo,
      Shirley

  7. Lynn Paul on May 21st, 2012 1:27 am

    What’s next? “peanut-free” not suitable if you are allergic? Idiots! “free-of” means “FREE-OF”!!!!!

    • Shirley on May 28th, 2012 12:34 am

      Hi Lynn–Great analogy! So often I wish celiac and non-celiac gluten issues would be taken as seriously. The results aren’t instantaneous, but they can be as deadly when one is glutened again and again over time.

      I don’t see where I’ve ever officially welcomed you to gfe either … ratfinks—and welcome! :-)
      Shirley

  8. Ellen (Gluten Free Diva) on May 21st, 2012 1:42 am

    Shirley, I think we might have to go out on the road giggin’ together:). I’ll bring my guitar and we can rehearse in a few weeks:). Nice job!!!! All kidding aside!

    • Shirley on May 28th, 2012 12:36 am

      Haha, Ellen! But wow, that’s quite the compliment! ;-) I think you might be disappointed with my performance skills though. I might be better as the songwriter who stays in the background. LOL I do appreciate the great feedback though!

      Shirley

  9. Tina @madame gluten-free vegetarian on May 21st, 2012 7:08 am

    Hi Shirley,

    I have been so disappointed by the NFCA I haven’t known what to say. I can’t even fathom why they began the Amber designation in the first place, unless it was financially motivated, which is incredibly disheartening.

    As far as I’m concerned, it’s either gluten-free or not. There is no “sort of” gluten-free. I will not be “sort of” sick.

    Dominos is just trying to cash in on the gluten-free market, and the NFCA was enabling them to do so. I hope no one buys that pizza, and they are forced to take it off the menu.

    It’s difficult enough trying to explain a gluten-free diet, now I have to explain (and I have!) why I can’t eat a (supposedly) gluten-free pizza from Dominos. *sigh* Thanks for nothing, Dominos and the NFCA.

    Thanks for listening, Shirley, and for all you do in the GF community!

    Tina.

    • Shirley on May 28th, 2012 12:40 am

      Hi Tina–You speak for many, and I applaud you for putting your feelings into words! This has to be one of the toughest, most disheartening situations I have faced since going gluten free. We “get” the ignorant, uninformed folks not understanding and not keeping us safe, but the NFCA? How is this situation even possible? And like you said, now we have to explain over and over why we our friends/family/co-workers cannot order us the “gf” pizza from Domino’s. :-( Please keep spreading the word. I’m with you on hoping that it will soon be taken off the market. We’re all in this together … sometimes I’m just louder than others. ;-)

      Hugs,
      Shirley

  10. Shannon Brown on May 21st, 2012 9:36 am

    Thank you for all you’re doing on this. I feel sorry for those who see “gluten-free” and don’t ask questions but believe it’s correct. It ain’t gluten-free unless it’s gluten-free. It’s like ordering off of a gluten-free menu in a restaurant without asking questions first. You don’t have to know a lot about gluten to make the menu but you do have to understand it to make gluten-free food.

    • Shirley on May 28th, 2012 12:44 am

      Hey Shannon–You make excellent points. We can’t protect everyone, but when there’s an NFCA statement, it implies some “checking out” and “approval.” The average person doesn’t know that sometimes the major focus means issuing disclaimers and making statements about “risk” when in reality everything is shared and decidedly not safe for anyone. Domino’s and NFCA are equally culpable on this one IMO. One good thing coming out of this is so many experts stating that there is no indication that any amount of gluten is safe for anyone with gluten issues.

      Thanks!
      Shirley

  11. Alta on May 21st, 2012 10:04 am

    Shirley, you are a genius for writing this. XOXO I too have been right there with you on this crazy roller coaster that has been the last few weeks. I love that you can manage to wrap it all up in such a way that perfectly suits the way we’ve been feeling, and can manage to make me smile all the way through. Hugs!

    • Shirley on May 28th, 2012 12:46 am

      Hey Alta–I think the word “genius” is mighty hefty praise, but I totally appreciate your support! “Crazy roller coaster” is exactly the way it’s felt and I’ve NEVER liked roller coasters. :-( I’m glad you felt this captured the situation and that it made you smile. The smiles in the gluten-free world have definitely been overshadowed by this situation the last few weeks.

      Hugs back!
      Shirley

  12. Ina Gawne on May 21st, 2012 10:41 am

    Shirley – well said! :) Thank the heavens for people like you! We have a local pizza place that advertizes gf pizza. I was sooo excited – but then found out they do not have a designated gf area to make their pizzas and could not guarantee no cross contamination. Boooo on them! I told them until they do, they have no right advertising GF Pizza – what they are doing is dangerous to any Celiac. He was not impressed – and neither was I as I walked out their door…I won’t go back there any time soon!

    • Shirley on May 28th, 2012 12:49 am

      Thanks, Ina! You’re the best! :-) So many want to jump on the gluten-free bandwagon these days. I get the ignorance part on independent owners like you mention, but when you do inform them and they don’t seem interested in making a serious attempt to keep the gf folks safe … well, that’s just inexcusable. I hope he gets much more feedback (without tons of folks getting ill!) and does make it truly gf if he’s going to offer “gf” pizza.

      Shirley

  13. Faith on May 21st, 2012 10:51 am

    Nice job Shirley!

    • Shirley on May 28th, 2012 12:49 am

      Thank you, Faith! :-)

      Shirley

  14. Mercy on May 21st, 2012 12:27 pm

    NICE JOB!!! Thanks for fighting for us all! You are the best!

    • Shirley on May 28th, 2012 12:50 am

      Awww, Mercy, you are so sweet! :-) Happy to help … this fight is just beginning.

      Shirley

  15. margaret on May 21st, 2012 12:34 pm

    Thank you from the bottom of my heart!!! I’m sooo thankful that we (GF people) have you and the other people out there looking out for all of our interests and health! Bless you and them!!!!
    Margaret

    • Shirley on May 22nd, 2012 9:13 pm

      Hi margaret–You are welcome, dear! Many, many thanks for the generous and super supportive feedback!

      Hugs,
      Shirley

    • Shirley on May 28th, 2012 12:53 am

      Hi there margaret–You are welcome. Thank you for the wonderful feedback, too. :-) We are stronger and more powerful when we speak out as a group! Please spread the word so all will know to keep speaking out on this unacceptable situation!

      Shirley

  16. Kim on May 21st, 2012 1:09 pm

    WTG, Shirley!! Excellent post and I love the lyrics! :)

    Kim

    • Shirley on May 28th, 2012 12:53 am

      Hey there, Kim!–Thanks so much! :-) Hope you had a lovely Memorial Day!

      Shirley

  17. Kim (Cook IT Allergy Free) on May 21st, 2012 1:26 pm

    I am going to have this in my head all day!! That is AWESOME, my friend! And I am LOVING the idea of you and Ellen going out on the road with this one. LOL You are going to have to give us a little rendition in person very soon (perhaps after a few cocktails)! :)

    So proud of you for doing this.. You are amazing, girlie!
    ox
    kim

    • Shirley on May 28th, 2012 12:56 am

      Hi Kim–I’m wondering if you still have this ditty in your head … LOL I will know that I’m thinking about it again after finally replying to comments. ;-) I’m so glad you like this, but think you and Ellen are being too optimistic on its road trip potential. But maybe … Yes, always better to do a few practice sessions with a few cocktails as aids. :-)

      Thanks so much, dear!
      xo,
      Shirley

  18. Ricki on May 21st, 2012 1:33 pm

    Shirley, you are hilarious! But the serious message comes through loud and clear. Great “song” and love the message! :)

    • Shirley on May 28th, 2012 12:57 am

      Hi Ricki–You always say that! ;-) Glad I kept you entertained and that the message came through, too. :-)

      Shirley

  19. Jane on May 21st, 2012 1:53 pm

    Thanks Shirley for all this great information and links! As someone who is relatively new to the gluten free “community”, I do get overwhelmed at times. Personally, I wouldn’t eat Dominos pizza anyways. I do appreciate this post and information.

    • Shirley on May 28th, 2012 1:00 am

      Hey Jane–Yes, so many who are living gluten free and doing it the healthy way would never touch Domino’s, but there are so many else who would try it that the topic must be discussed again and again to keep them safe. I understand being overwhelmed. It gets easier over time! You have to remember I have 9 years of living gf and negotiating all that’s related to doing so. ;-)

      Thanks!
      Shirley

  20. Maggie on May 21st, 2012 2:23 pm

    You are awesome Shirley! I could feel your passion in those lyrics. Such a superstar! All endings are new beginnings and this is a BIG one. Hooray for all of you who hopped on this beast for the rest of us. In gratitude. xo

    • Shirley on May 28th, 2012 1:02 am

      Hi Maggie–I love your comment, dear! As I’ve said many times before, it’s wonderful to have you in “my corner.” :-) Keep spreading the word, dear. To paraphrase a saying, gluten-free friends don’t let gluten-free friends eat Domino’s “gluten-free” pizza.

      xo,
      Shirley

  21. Cheryl on May 21st, 2012 3:01 pm

    Way to go Shirley! Another restaurant to watch out for is Garlic Jim’s! I was newly diagnosed and wanted pizza and got so sick from their GF pizza!

    Keep up the good job!

    • Shirley on May 28th, 2012 1:05 am

      Hi Cheryl–Thank you, dear! So happy to have you here at gfe! :-) Thanks for the heads up on Garlic Jim’s! So sorry you had to find out the hard way. :-(

      Shirley

  22. Donna Strickler on May 21st, 2012 3:56 pm

    WTG Shirley :-)!

    • Shirley on May 28th, 2012 1:08 am

      Thank you, Donna!! :-) Tell everyone you know who is gluten free to steer clear of that pizza.

      Shirley

  23. SherriS. on May 21st, 2012 4:20 pm

    Yes, totally with you Shirley! I was excited by Domino’s news at first til my husband read their disclaimer and I said “Not for me – cuz it ain’t really gluten-free”

    Feeling your lyrics obviously:D

    Obviously still have a long ways to go!

    • Shirley on May 28th, 2012 1:10 am

      Hey Sherri S.–That’s the saddest thing about this situation … before it happened, I was much more hopeful about how “far we had to go.” This ongoing debacle makes it feel like we’ve had a major setback, and not just in one regard, but in many ways. Hoping that this attempt to bamboozle the gf public will soon be aborted!

      Shirley

  24. Christy L on May 21st, 2012 5:04 pm

    I love the song! Thanks for all you do for the gluten free community. It is so important to so many people.

    • Shirley on May 28th, 2012 1:13 am

      Hi Christy–Thanks, dear! I appreciate all your support. Please share the info with as many as you know. Post it on your Facebook page, tell gf friends, etc. We don’t want anyone to mistakenly get this pizza and get ill … from the first time or after several times eating this clearly gluten-full pizza. :-(

      Shirley

  25. cheryl on May 21st, 2012 6:44 pm

    LOVE it Shirley! Too cute.

    • Shirley on May 28th, 2012 1:14 am

      Hi Cheryl– :-) Thanks so much, my friend! I appreciate what you have done to spread awareness on this topic! Let’s keep up the good fight. ;-)

      Shirley

  26. Lexie on May 21st, 2012 7:10 pm

    You rocked it Shirley!

    • Shirley on May 28th, 2012 1:15 am

      Awww, Lexie, it’s always wonderful to have your support! :-) Please spread the word to your blog/FB readers and friends so they will know not to feed this pizza to their families.

      Shirley

  27. Wendy Coffman on May 21st, 2012 7:12 pm

    I haven’t had the Domino’s but I did try a “GF” pizza from a very nice upscale local pizza chain without asking about cross contamination issues and spent and afternoon so ill for my lack of investigation. I’ll never risk that again, and certainly not for a cheap junk food pizza.

    • Shirley on May 28th, 2012 1:17 am

      Hi Wendy–Welcome to gfe! :-) What you’ve shared would be exactly the same situation as for Domino’s … nothing being done to prevent cross contamination results in gluten-full pizza and sick gluten-free patrons. :-( Thanks for sharing your related experience!

      Shirley

  28. Moriah on May 21st, 2012 8:31 pm

    This was absolutely fantastico!! Love it :). Thanks do much for all you did to help keep us safe and healthy. God bless you greatly

    • Shirley on May 28th, 2012 11:11 pm

      Hey Moriah–Thank you so much for your support and very kind words! Please keep sharing … we’re all in this together. :-)

      Shirley

  29. Nance on May 22nd, 2012 10:08 am

    Perhaps Domino’s also believes that a woman can be a “little bit pregnant.” Hmmmm….

    • Shirley on May 28th, 2012 11:44 pm

      Hey Nance–Trying to catch up on my last night of vacation. Yes, exactly! :-(

      Shirley

  30. Melissa @ glutenfreeforgood on May 22nd, 2012 12:59 pm

    I’m just getting caught up with GFE’s final blog post on this (I took a detour from Pete’s post). Gosh, this has been quite the ongoing ordeal. I’m not a fan of Domino’s in any way, shape, or form (food wise) and I decided I had nothing of value to add to the hoopla, so I’ve pretty much stayed out of the fray. Having said that, and having read your post and Pete’s post today, I do see the frustration the amber designation brought to the GF community. I’m glad NFCA has decided to forego that one, but I must admit to feeling sorry for those involved (on many fronts). I believe all these organizations (NFCA, GIG, CSA, CDF), which I support in one way or another, are trying to help the GF community. It’s an evolution and a learning process with bumps in the road. Hopefully this will help increase awareness and increase the importance of sound kitchen practices.

    Melissa
    PS: Gosh, as if you don’t have enough on your plate already, now you’re writing songs! How about an audio of you singing the lyrics?! =)

    • Shirley on May 28th, 2012 11:53 pm

      Hey Melissa–I didn’t know about Pete’s post until you mentioned it. Thanks for the heads up! I do admire you for being diplomatic and “taking the high road,” plus I’m sure you’ve stated what you sincerely believe about “bumps.” But frankly, I continue to be disturbed by Domino’s, NFCA and, subsequently, others talking about a “risk of cross contamination” and a “shared kitchen,” when in reality it’s shared everything as I stated and not a risk but a reality. I also continue to be disturbed by those who think Domino’s is doing a good thing. Just today, there were comments on my FB page about Domino’s allowing one to eat “mostly safe,” celiacs “owning” the term gluten free (and making it too strict), and much more that’s either disheartening or incorrect, or both. The community is being divided over this issue. I’m all for us coming together, but not in support of a product that’s not safe, even if I’d personally never eat it anyway (I agree with you there!). Oh, and I don’t think there will be an audio of my singing the lyrics. ;-) Thanks for taking the time to comment!

      Shirley

  31. Carole on May 22nd, 2012 2:01 pm

    Well sung.

    • Shirley on May 28th, 2012 11:54 pm

      Hi Carole–Good to see you again! Thanks! ;-)

      Shirley

  32. Sharon Mc. on May 22nd, 2012 4:43 pm

    Wow, Shirely, well said! Perfect! Those of us in the gluten free community are so lucky to have you as a leader. I am so grateful to know that you are out there giving this issue a voice. Keep up the good work. I sincerely appreciate your dedication and efforts. Thank you!!

    • Shirley on May 28th, 2012 11:59 pm

      Hey Sharon–I always appreciate your support—thanks so much! Sadly, I think there are as many who are living gluten free who are supporting this pizza and thanking Domino’s as there are those of us fighting it. :-( That makes the fight so much harder. It’s disturbing to see how many folks who are willing to try this pizza even when they are told all the facts. Keep spreading the word though, dear. Maybe if we tell folks until they “get it,” they’ll reconsider. I sincerely hope so.

      Shirley

  33. Susan on May 22nd, 2012 5:38 pm

    What a fascinating post Shirley. I had to look up the acronyms as I wasn’t familiar with NFCA and CDF. I can’t belief any organization that is dispensing information to celiacs would even consider having an amber system. It is either gluten free or it is off-limits. I agree that the Dominos chain was trying to cash in on the GF cash cow. It is upsetting that supposedly reputable organizations are willing to compromise their standards and people’s health along the way. Thanks for your heartfelt post.

    • Shirley on May 29th, 2012 12:03 am

      Hi Susan–You’re welcome. :-) This topic is on my mind daily, because there’s still much work to be done. There are many who are living gf who are not agreeing with your statement “It is either gluten free or it is off-limits.” That seems “black and white” enough to most of us, but many still want to eat this unsafe pizza. That’s unbelievable to me. If Domino’s stops making it, they will be protecting many of us. They are doing just the opposite now. :-(

      Shirley

  34. Carol Simply Gluten Free on May 22nd, 2012 6:42 pm

    Couldn’t have said (or sang) it better!
    xo,
    c

    • Shirley on May 29th, 2012 12:03 am

      Hi Carol!–I always appreciate your sweet words! Hope you had a wonderful Memorial Day!

      xo,
      Shirley

  35. Heather @ Life Gluten Free on May 22nd, 2012 11:40 pm

    Shirley, you are clever :) Great twist on the song.

    I am with you 100%. I did spread the word about domino’s pizza as well. We don’t eat out, but it’s important to spread the message to those who do so they can be aware that in so many places “gluten free” doesn’t mean what it should mean. This applies to anything packaged too, including vitamins and supplements.

    • Shirley on May 29th, 2012 12:06 am

      Hi Heather–It’s always great to see you here! :-) Thanks so much for the generous feedback! Thanks, too, for spreading the word. Your comment points out a bit of an irony. There are many who will not take vitamins and supplements that contain gluten, but they will eat this pizza. I sincerely hope that folks will wisen up and stop doing so!

      Shirley

  36. Jeanette on May 24th, 2012 10:17 am

    Shirley – what a creative and passionate way to get this message out. It is such a shame that so many companies are using the term gluten-free so loosely without realizing how dangerous it is for people who have CD. I was just at a luncheon yesterday and a woman whose son has airborne food allergies was talking about her struggles. Another mom chimed in about someone who had told class moms that her kid had food allergies and had peanut snacks banned from the classroom only to then allow her son to sit in the backseat of a car with other kids who were eating peanut butter sandwiches. These types of mixed signals contribute to why food allergies are not taken seriously by many. Thank you for being such a strong advocate.

    • Shirley on May 29th, 2012 12:11 am

      Hi Jeanette–Thanks so much! Yes, it’s very much a shame in regard to those who have CD and other gluten disorders (Dr. Fasano’s term). :-( You make a great point on the lack of consistency. The lack of consistency or mixed signals that you shared jeapordizes not only that individual’s health, but also the health of so many others. We need to present a unified front to protect ourselves/our loved ones, which will in turn protect all of us as a whole.

      Shirley

  37. Angela on May 24th, 2012 11:29 am

    whow! You are quite talented and very passionate in your message and you are so right. I didn’t understand it at first, but through your warnings and education – and because I went through some “glutening experiences” along the way – yes I am fully on your side – on all our side on this one! No question that gluten free has to be 100% gluten free and no contamination!
    thanks Shirley, you rock!

    • Shirley on May 29th, 2012 12:14 am

      Hi Angela–I wouldn’t have chosen to have you go through those experiences, but you’ve learned great lessons that will allow you to be gf 100%. Thanks so much for being part of the passionate cheering section for “gluten free means gluten free”!

      Shirley

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